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Community social media support

To connect with other families of people living with Angelman syndrome there are a number of social media pages and groups:

COVID-19 Resources

References and Resources

The following are useful articles and resources related to a number of the key interest areas for Angelman syndrome. 

These may be shared with family and friends, medical and allied health practitioners, and also referenced in NDIS Plan Reviews.

  • Are Angelman and Prader‐Willi syndromes more similar than we thought? Food‐related behavior problems in Angelman, Cornelia de Lange, Fragile X, Prader‐Willi and 1p36 deletion syndromes – Welham – 2015 – American Journal of Medical Genetics Part A – Wiley Online Library https://onlinelibrary.wiley.com/doi/10.1002/ajmg.a.36923

A story about Angelman syndrome

Meet Emily & Michelle

Meet Laura & her two children

Meet Joanne, Frank & Jacob

Videos

For more videos on Angelman syndrome, the Global Angelman Registry, and Research visit – Foundation for Angelman Syndrome Therapeutics YouTube Channel

Speech from Kane Blackman for the Launch of the Rare Disease Strategic Action Plan at Parliament House on 26 February 2020 – Rare Voices Australia – Rare Disease Speech – Kane Blackman