15 February - Mark your Diaries
International Angelman Day (IAD) is an annual event held on 15 February. It is observed by over 55 international organisations around the world, who all support people with Angelman syndrome, their families and caregivers.
We celebrate on the 15 February in recognition of the 15th chromosome being affected in Angelman syndrome, and February as it is International Rare Disease month.
Each year ASAA organises events across Australia to bring our community together to celebrate our loved ones living with AS, raise awareness of this rare disease, and remember those who are no longer with us.
Here in Australia and around the globe landmarks and public buildings ‘Light It Blue’ in honour of people with AS.
Contact us for information about events or to raise awareness for IAD or Rare Disease Month here.
For information on the global events for International Angelman Day, visit the following dedicated sites:
Website – International Angelman Day
Facebook – International Angelman Day
Help spread awareness
February - Rare Disease Month
Rare Disease Day is marked on the last day of February, which was declared rare disease month in 2008.
The purpose of Rare Disease Month/Day is to raise awareness of the over 7,000 rare diseases and to generate change for the 300 million people worldwide living with a rare disease, their families and carers.
Visit the international Rare Disease Day site for additional information and resources at rarediseaseday.org.