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Community Social Media Groups

To connect with other families of people living with Angelman syndrome there are a number of social media pages and groups across Australia and around the globe.

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References and Resources

The following are useful articles and resources related to a number of the key interest areas for Angelman syndrome. These may be shared with family and friends, medical and allied health practitioners, and also referenced in NDIS Plan Reviews.

  • Are Angelman and Prader‐Willi syndromes more similar than we thought? Food‐related behavior problems in Angelman, Cornelia de Lange, Fragile X, Prader‐Willi and 1p36 deletion syndromes – Welham – 2015 – American Journal of Medical Genetics Part A – Wiley Online Library https://onlinelibrary.wiley.com/doi/10.1002/ajmg.a.36923

A story about Angelman syndrome

Meet Emily & Michelle

Meet Laura & her two children

Meet Joanne, Frank & Jacob

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Research Videos

For more videos on Angelman syndrome, the Global Angelman Registry, and Research visit - Foundation for Angelman Syndrome Therapeutics YouTube Channel

Educational Videos

For access to Educational videos on Communication in Angelman syndrome, Behaviour Support, Therapies etc visit - Angelman Syndrome Foundation (USA) YouTube Channel