Our mission is really quite simple. We exist to support, inform, educate, network, promote research, and to advocate for families affected by Angelman syndrome. We achieve this through:

ADVOCACY:

We support families on their diagnostic journey and through all stages of life, connecting with the AS community at a local, state, and national level.  We develop and identify quality resources to help families in their day-to-day living. We create and foster a community where people and families with Angelman syndrome can belong and be heard.

AWARENESS:

We develop and provide resources to raise awareness, inform and educate AS families, medical and allied health professionals, educational providers, and the general public about Angelman syndrome and how to provide the best support and quality care. We raise awareness of Angelman syndrome including through our website, social media, media appearances, stakeholder engagement, publications and conference presentations.

RESEARCH:

We promote medical, therapeutic, and educational research that will benefit families and individuals with Angelman syndrome. We collaborate with the Foundation for Angelman Syndrome Therapeutics (Australia) to keep the community up to date with research and to encourage research in Australia. We connect with researchers and promote research programs and clinical trials, providing necessary representation as a patient advocacy group.

FUNDRAISING:

We fundraise to provide support for Angelman syndrome individuals and their families in times of crisis, and to contribute to hosting our biannual conference. We rely on grants, donations, and testamentary gifts from the community and are grateful for our supporters.