Every Person with Angelman Syndrome is Unique
The Global Angelman Syndrome Registry is the first online Patient Driven registry for Angelman Syndrome; putting power in the hands of those who care for someone with the Syndrome. This registry represents an important step towards better outcomes for individuals with Angelman Syndrome and their families.
The NDIS is Australia’s first national Scheme for people with disability. It provides funding directly to individuals. Our NDIS Guide for Angelman Syndrome will support you through the participant and planning process.
There is a whole community in Australia working together to support families with Angelman syndrome. Learn about our wonderful collaboration with the Foundation for Angelman Syndrome Therapeutics (FAST Australia)
If your loved one has been diagnosed with Angelman syndrome or you would like to make immediate contact with our association or have questions about Angelman syndrome, we welcome you to connect with us