ASAA National Committee
Our committee is made up of representatives from all over Australia and include parents and siblings of people with Angelman syndrome.
We meet bi-monthly and work throughout the year to provide peer support for families while progressing our annual work program and delivering on our Strategic Plan.
The committee provide support for AS families, and provide assistance and information on AS to medical and allied health professionals, elected representatives, and the media.
If you are a newly diagnosed family or needing some support, please contact a committee member in your state or a member of the Executive.
0488 996 181
Fiona and Connor
Fiona grew up in Melbourne and lives in Brisbane with her husband Gerry and has a daughter and two sons – her youngest child, Connor, has Angelman syndrome (UPD).
Fiona has over 25 years in the federal government sector, with more than 15 years in senior management and developing and implementing policy, regulations and frameworks across risk management, safety and community engagement.
With qualifications in neuropsychology and cognitive behavioural therapy, she runs a small business as an NDIS Support Coordinator, specialising in neurodevelopmental disorders.
Fiona was a founding Board member of the Foundation for Angelman Syndrome Therapeutics (Australia) in 2010.
Leticia and Allara
Leticia grew up in Sydney but has lived in Western Australia for 25 years with her husband Kelvin, and their two daughters. Allara, her eldest child, has Angelman syndrome (Uni Parental Disomy).
With qualifications in Community Services, Public Relations and Human Resources, Leticia has professional experience and customer/client service proficiencies gained across various industries – recruitment, hotels, banking, retail, small business and beauty.
Her lived experience since 2000 parenting Allara, led her to a fulfilling career change doing Family Support within the Perth Children’s Hospital for 7 years and for the past 2 years she has worked as a Disability Advocate.
Leticia has broad Board member experience across the disability and Genetic Support sectors and is a founding member of the Angelman Syndrome Association of WA. She recently retired from her role as President which she held for 12 years in addition to positions as Secretary & Vice President since it’s incorporation in 2007.
She has been involved with ASAA since 2009 and has previously held executive positions and is pleased to be able to contribute again as WA Representative.
0413 332 509
Lysandra and Joel
Lysandra grew up in Queensland, lived in Western Australia for over two decades, and now lives in Brisbane with her husband Kieran, and their five children and two grandchildren. Joel, the middle child, has Angelman syndrome (Deletion).
Lysandra is a qualified nurse working in the Emergency Department at Queensland Children’s Hospital.
Lysandra is a founding member of the Angelman Syndrome Association of WA (ASAWA), and has forged many a wonderful friendship in the Angelman community.
She has been involved with ASAA since 2009 and has held several executive positions.
New South Wales
0416 238 686
Kevin and Andrew
Kevin lives in Sydney and has one son and two daughters – his son, Andrew, is the eldest and has Angelman syndrome (Deletion).
Kevin and his wife Simone were founding families of the ASAA from early 1993, and both dedicated themselves to the association, holding numerous senior positions over several decades. Simone was President of the ASAA for many years, and also President of IASO (International Angelman Syndrome Organisation) for three years before sadly passing away from breast cancer in 2006.
Kevin is a teacher with over 37 years’ experience, specialising in Mathematics and IT, and has held leadership positions in Catholic schools for over three decades.
He has also been a member of the L’Arche Sydney Board for 7 years in the recent past.
0418 255 549
Kane and Finn
Kane grew up in Melbourne and lives in Perth with his wife Sarah, and has two sons – his eldest, Finn, has Angelman syndrome (ICD).
He is a senior public relations executive with the Western Australian State Government at the Insurance Commission, which delivers personal injury and liability insurance schemes, lifetime care and an investment portfolio.
Kane has more than 15 years’ experience in the mining, oil and gas, and financial service sectors, and is a Charted Secretary and lecturer in corporate governance. Kane is also on the WA State Committee of the Governance Institute.
Kane is Deputy Chair of Rare Voices Australia, Director of Therapy Focus (WA), and sits on two Ministerial Advisory Councils for Precision Health and Disability in Western Australia.
Social Media Advisor
0412 325 917
Chrissy and Elliott
Chrissy lives in Melbourne with her husband Ben and their son and daughter. Their eldest, Elliott, has Angelman Syndrome (Deletion).
She is a qualified nurse that specialises in coordinating complex medical patients, providing them education and support.
Chrissy joined the ASAA in 2018 and is interested in helping newly diagnosed families and helping them chart their course.
NSW Representative/ Newsletter Advisor
New South Wales
0414 648 628
Sue and Alanna
Sue lives in Newcastle with her husband Ross and their adult daughter. She has three children, their youngest Alanna has Angelman syndrome (Deletion).
Sue is a founding family with ASAA, having attended the first meeting in Sydney in 1993 and has continued to make a valuable contribution for nearly three decades.
She is a part-time teacher and is interested in social inclusion and travel with Angelman syndrome.
Australian Capital Territory
0402 552 209
Paul and Sebastian
Paul lives in Canberra with his wife Felicity their three sons. His middle son, Sebastian has Angelman syndrome (Deletion).
Paul has a Masters degrees in linguistics and education and has previously worked as a teacher and an education administration.
He currently works a senior manager in education governance and student management at the Australian Nation University, in Canberra, and is also pursuing research into language acquisition in non-verbal children.
Paul has previously been a Board member of Friends of Brain Injured Children Inc. and is also a member, and past president, of Manuka Childcare Association Inc. a not for profit early learning centre in Canberra.
Paul’s wife Felicity is currently on the Board of FAST (Australia).
South Australia/Northern Territory Representative
Evangelos (Vange) Ignatiou
0417 840 922 Email Vange
Vange and Jorje