We are fortunate in Australia to have two dedicated organisations working together to help people with Angelman syndrome and their families achieve the best quality of life.
ASAA is proud to collaborate with Foundation for Angelman Syndrome Therapeutics (Australia) to develop strategies and initiatives that can collectively best serve the Australian AS community.
Both organisations have a core mission to improve the quality of life for our loved ones diagnosed with Angelman syndrome and we both do that in different but complimentary ways. ASAA is focussed on providing family support for all day-to-day aspects of living with AS. The goal of FAST Australia is to fund and collaborate in research aimed at improving the quality of life for individuals with AS, and educate on the developments, including sharing where hard-earned donations and fundraising dollars are spent.
Together we are searching for the misdiagnosed or undiagnosed families within the wider Australian community. The greater our collective AS voice, the greater our power to advocate for our community, and the greater the opportunity we have to provide comprehensive support for families, and progress research into therapeutics and treatments for our loved ones.
View our joint brochure here:
ASAA Receives Grant From FAST Australia
ASAA is delighted to receive a grant from FAST Australia. The grant will cover the annual day to day administration costs of the ASAA.
As a result, ASAA will no longer be collecting membership fees to support our work. This saves ASAA and families time and money from collecting and processing those fees and means that ASAA can spend more time on important support and advocacy tasks.
The grant will allow both ASAA and FAST Australia to collectively achieve more, and to invest our efforts into joint projects. Our immediate priorities are to build our family network and address the under-diagnosis rates of Angelman syndrome across all age groups.
This initiative will help build a strong voice for ASAA when advocating for families and educating governments, the National Disability Insurance Agency (NDIA), and medical and allied health professionals on Angelman syndrome. This will in turn allow FAST Australia to continue to promote Australia as a clinical trial destination, and to generate research for better outcomes for all Australian families.
In the coming months we will be updating our Membership Strategy and sharing updates on our key initiatives. We look forward to the continued support from our amazing AS community.
June 2021