Our NDIS Guide for Angelman syndrome
The NDIS Guide for Angelman syndrome provides:
- General information on the NDIS
- An overview of the process – from becoming a participant and the planning process, to receiving a Plan and the Review process
- AS Participant Statement Examples
- Questions you will be asked during your planning meeting
- Funded Plan Support Examples from the AS community
- Participant transport fact sheet
- Glossary (The meaning of important words used in the NDIS process)
Click on this link to download the NDIS Guide for Angelman syndrome
Key References
There are several key references that can assist in providing the NDIA with evidence-based guidance on supporting people with rare disease and disabilty:
Disability & Rare Disease (2019) (Source: Rare Voices Australia)
Other NDIS Resources
Click the links below to access other useful resources for navigating the NDIS:
The NDIS Act 2013 – What is reasonable and necessary (Source: DSC)
NDIS Planning Workbook (Source: Identity WA)
NDIS Hints and Tips (Source: The Growing Space)
Assistive Technology – What can I use my funds for? (Source: The Growing Space)
Ten Steps to Excellent NDIS Therapy Reports (Source: Valid)
Getting the Language Right (NDIS) (Source: Summer Foundation)
Respite and NDIS (Source: Endeavour Foundation)
Independent Advisory Council to the NDIS_Advice and Submissions
Tips on Getting Respite through NDIS (Source: Association for Children with a Disability)
Transition Resources
Useful transition resources as people get older:
Now I am 16! (Source: Parent to Parent_Qld May 2020)
Now I am 18! (Source: Parent to Parent_Qld May 2020)
Supported Independent Living (SIL) (Source: Endeavour Foundation)
Early Intervention and the NDIS approach
This video looks at how the NDIS manages early intervention for children with disability or developmental delay. An adviser from the NDIS says it’s important that parents get quick answers, expert advice and intervention for their child as early as possible. This can happen without having to wait for a diagnosis. Parents say that using the NDIS to get help for their child has helped them feel supported and positive about their child’s future.
