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# Angelman Syndrome Association Australia

## Sitemaps

- [XML Sitemap](https://angelmansyndrome.org/sitemap.xml): Contains all public & indexable URLs for this website.

## Posts

- [A Day for Tex to have a Ball](https://angelmansyndrome.org/mainstream-news/) - Courier Mail
- [Fun in the Sun for International Angelman Day](https://angelmansyndrome.org/mainstream-news/) - Redland City Bulletin
- [Meet Elliott - Good Friday Appeal](https://angelmansyndrome.org/mainstream-news/) - Good Friday Appeal - Royal Children's Hospital, Melbourne
- [Closure of Cottesloe care centre](https://angelmansyndrome.org/mainstream-news/) - WA Today
- ['I play for him'](https://angelmansyndrome.org/mainstream-news/) - AFL News
- [Hope on the Horizon](https://angelmansyndrome.org/mainstream-news/) - West Australian
- [Inclusion in the evolving dictionary](https://angelmansyndrome.org/mainstream-news/) - Sydney Morning Herald
- ['He didn’t talk at 15 months, then we got the Angelman Syndrome diagnosis'](https://angelmansyndrome.org/mainstream-news/) - Kidspot
- [Teen works towards goals](https://angelmansyndrome.org/mainstream-news/) - Redlands City Bulletin
- [Social Hibernation for the Vulnerable](https://angelmansyndrome.org/mainstream-news/) - SourceKids
- [How COVID-19 has impacted our medically fragile and rare disease community](https://angelmansyndrome.org/mainstream-news/) - SourceKids
- [Jumping castle provides much needed play for rural girl with Angelman syndrome](https://angelmansyndrome.org/mainstream-news/) - ABC Capricornia

## Pages

- [Home](https://angelmansyndrome.org/) - Every Person with Angelman Syndrome is Unique. View these resources to learn more https://www.youtube.com/watch?v=U5J0kvFSTtA
- [Resources](https://angelmansyndrome.org/family-support-services/) - Newly Diagnosed The First 100 Days GuidebookThis First 100 Days Guidebook is created by Angelman parents and caregivers who have walked this path before you, to help you navigate this new diagnosis. We hope you will find useful ideas and resources in this booklet to help guide you and your family in these early days
- [Meet our National Committee](https://angelmansyndrome.org/our-committee/) - ASAA National Committee Our committee is made up of representatives from all over Australia and includes parents and siblings of people with Angelman syndrome.We meet bi-monthly and work throughout the year to provide peer support for families while progressing our annual work program and delivering on our Strategic Plan.The committee provide support for AS families,
- [About Us](https://angelmansyndrome.org/about-us-2/) - About Our Organisation Angelman Syndrome Association Australia (ASAA) is the key advocacy and peer support organisation for people living with Angelman syndrome and their families in Australia. We are an all-volunteer committee consisting of family members of people living with Angelman syndrome (AS). The committee dedicate their time and expertise to supporting families, working with other
- [Support](https://angelmansyndrome.org/support-2/) - Family Support Fund In 2023, Angelman Syndrome Association Australia (ASAA) established a Family Support Fund to provide financial assistance to families supporting individuals with Angelman syndrome during periods of acute and exceptional need.In 2025, we extended the fund to also provide a small Family Care Contribution for individuals with Angelman syndrome during an unplanned hospital stay with extenuating circumstances. Occasionally we provide
- [National Conferences](https://angelmansyndrome.org/collaboration-fast/national-conferences/) - 2025 Collaborative Conference - Shaping the Future, Supporting Today The Angelman Collaborative Conference is back in 2025—bringing together families, clinicians, and researchers for two powerful days at Sydney Harbour. Co-hosted by the Foundation for Angelman Syndrome Therapeutics (FAST) Australia and the Angelman Syndrome Association Australia (ASAA), this event is designed for every member of the
- [Angelman Syndrome Association Australia](https://angelmansyndrome.org/about-us/) - About Our Organisation Angelman Syndrome Association Australia (ASAA) is the key advocacy and peer support organisation for people living with Angelman syndrome and their families in Australia. We are an all- volunteer committee consisting of family members of people living with Angelman syndrome (AS). The committee dedicates our time and expertise to supporting families, working with
- [Clinical Support Services](https://angelmansyndrome.org/clinical-support-services/) - Genetic Testing Victorian Clincial Genetics ServicesVictorian Clinical Genetics Services (VCGS) is a specialist prenatal, childhood and adult genetics service. VCGS is an Australian not-for-profit subsidiary of Murdoch Children’s Research Institute (MCRI) and is located on-site at The Royal Children’s Hospital (RCH) Melbourne.VCGS provides an integrated genetic consultation, counselling, testing and diagnostic service for children, adults,
- [International Angelman Day](https://angelmansyndrome.org/international-angelman-day/) - 15 February - Mark your Diaries International Angelman Day (IAD) is an annual event held on 15 February. It is observed by over 55 international organisations around the world, who all support people with Angelman syndrome, their families and caregivers. We celebrate on the 15 February in recognition of the 15th chromosome being affected in Angelman
- [Support](https://angelmansyndrome.org/support/)
- [The NDIS - Information & Resources](https://angelmansyndrome.org/ndis/) - Our NDIS Guide for Angelman syndrome The NDIS Guide for Angelman syndrome provides:General information on the NDISAn overview of the process – from becoming a participant and the planning process, to receiving a Plan and the Review processAS Participant Statement ExamplesQuestions you will be asked during your planning meetingFunded Plan Support Examples from the AS
- [Get Involved](https://angelmansyndrome.org/get-involved/) - ASAA Membership Every new member of the Angelman syndrome Association Australia (ASAA) strengthens our advocacy for people with Angelman syndrome in Australia and their families.Your membership boosts our voice, raises our profile, increases awareness of Angelman syndrome, and guides our activities and strategic direction. Benefits of Membership The members of ASAA: Belong – you will belong
- [Angelman Syndrome](https://angelmansyndrome.org/angelman-syndrome/) - What is Angelman syndrome? Angelman syndrome (AS) is a rare genetic disorder that affects approximately 1 in 15,000 live births*.Symptoms include global developmental delay, impaired movement and balance, lack of speech, seizures, feeding and sleep difficulties. Early diagnosis is critical; however, AS is often misdiagnosed as cerebral palsy or autism.People living with AS require life-long
- [Collaboration with FAST Australia](https://angelmansyndrome.org/collaboration-fast/) - We are fortunate in Australia to have two dedicated organisations working together to help people with Angelman syndrome and their families achieve the best quality of life. ASAA is proud to collaborate with Foundation for Angelman Syndrome Therapeutics (Australia) to develop strategies and initiatives that can collectively best serve the Australian AS community. Both organisations
- [Latest News](https://angelmansyndrome.org/news/) - Media Articles Real Dad Stories – Kane and Finn Blackman Real Dad Series 29 June 2021 Read More Meet Elliott – Good Friday Appeal Good Friday Appeal - Royal Children's Hospital, MelbourneRead More April 1, 2021 A Day for Tex to have a Ball Courier MailRead More March 26,
- [Research](https://angelmansyndrome.org/research-2/) - Is there a cure? Learn More Not at the moment, but researchers are working on it. Some symptoms can be treated. The condition is permanent but is not degenerative. People with Angelman syndrome can look forward to a normal lifespan however it is important to carefully manage certain conditions including epilepsy, dysphagia and chronic constipation
- [Contact Us](https://angelmansyndrome.org/contact/) - Living with Angelman syndrome is both challenging and very rewarding.We would love to hear from you if you or someone you know needs support, more information, or you wish to access the wealth of experience that Angelman syndrome families have gained over time.We welcome enquiries from families, therapists, medical professionals, friends and those supporting people with
- [Resource Library](https://angelmansyndrome.org/other-support-services/) - COVID-19 Information & Support Management & Operational Plan for People with a Disability NDIS Coronavirus (COVID-19) information and support Coronavirus (COVID-19) hospital companion for people with disability COVID-19 Planning Resource for People with Disability (Australia) Videos Imagine you were told your child wouldn’t talk…Speech from Kane Blackman for the Launch of the Rare Disease Strategic Action
- [Updates](https://angelmansyndrome.org/advocacy/) - Date - Blog Title Blog content Date - Blog Title Blog content
- [Resources](https://angelmansyndrome.org/resources/) - Browse through the library of resources below to find out about support services available to assist you in caring for your loved one with Angelman syndrome. Clinical Support ServicesLearn about dedicated Angelman syndrome Clinics in Sydney and Melbourne. National Disability Insurance SchemeGet the help you need navigating the NDIS Family Support ServicesFind out about a
- [Mission](https://angelmansyndrome.org/mission/) - Our Mission is really quite simple. We want to support, inform, educate, network, promote research and to advocate for families affected by Angelman syndrome throughout Australia.We will do this through: EDUCATION:of Angel families, medical and educational communities and the general public about Angelman syndrome.SUPPORT AND ADVOCACY:of ongoing national, regional and local support systems for individuals with
- [Strategic Plan](https://angelmansyndrome.org/strategic-plan/) - Our strategic plan was finalised in 2018 and focuses on how we plan to deliver on our mission to educate and advocate for families affected by Angelman syndrome.
- [Events](https://angelmansyndrome.org/events/)
- [Join Us](https://angelmansyndrome.org/join-us/)
- [Donate](https://angelmansyndrome.org/donate/)
- [Membership](https://angelmansyndrome.org/membership/)
- [Sample Page](https://angelmansyndrome.org/sample-page/) - This is an example page. It's different from a blog post because it will stay in one place and will show up in your site navigation (in most themes). Most people start with an About page that introduces them to potential site visitors. It might say something like this: Hi there! I'm a bike messenger

## Categories

- [Mainstream News](https://angelmansyndrome.org/category/mainstream-news/)

## Tags

- [Good Friday Appeal](https://angelmansyndrome.org/tag/good-friday-appeal/)
- [Angelman syndrome](https://angelmansyndrome.org/tag/angelman-syndrome/)
- [Melbourne](https://angelmansyndrome.org/tag/melbourne/)
- [Courier Mail](https://angelmansyndrome.org/tag/courier-mail/)