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ANNOUNCEMENT – ASAA RECEIVES GRANT FUNDING FROM FAST (AUSTRALIA)

ASAA is delighted to receive a grant from FAST Australia. The grant will cover the annual day to day administration costs of the ASAA.

As a result, ASAA will no longer be collecting membership fees to support our work. This saves ASAA and families time and money from collecting and processing those fees and means that ASAA can spend more time on important support and advocacy tasks.

The Australian Angelman syndrome community is fortunate to be served by two influential and independent organisations, operating in collaboration. The grant will allow both organisations to collectively achieve more, and to invest our efforts into joint projects.

Our immediate priorities are to build our family network and address the under-diagnosis rates of Angelman syndrome across all age groups.

This initiative will help build a strong voice for ASAA when advocating for families and educating governments, the National Disability Insurance Agency (NDIA), and medical and allied health professionals on Angelman syndrome.  This will in turn allow FAST Australia to continue to promote Australia as a clinical trial destination, and to generate research for better outcomes for all Australian families.

We look forward to the continued support from our amazing AS community.

Fiona Lawton

National President – Angelman Syndrome Association Australia

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