What Support is available to me?
We are fortunate in Australia to have two dedicated groups working together to provide support to the Angelman community.
Angelman Syndrome Association Australia (ASAA) is focussed on providing family support for all the day to day aspects of managing and planning with Angelman Syndrome, the Foundation for Angelman Syndrome Therapeutics Australia (FAST) is focussed on funding research and initiatives that lead towards treatments.
Both organisations work collaboratively to advocate for our loved ones.
The goal of ASAA is to support, inform, educate, network, promote research and to advocate for families affected by Angelman syndrome. People with AS are eligible for the NDIS and many other State and Commonwealth supports – you can talk to the ASAA on how to access these supports.
The goal of FAST is to fund and collaborate in research aimed at improving the quality of life and understanding for individuals with Angelman syndrome. When new information is made publically available, FAST will help to distribute and educate on the developments including where hard-earned donations are spent. FAST can help you to raise funds in your local community or on a large scale to help further research into Angelman syndrome.