Good Friday Appeal - Royal Children's Hospital, Melbourne
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A Day for Tex to have a Ball
Courier Mail
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Fun in the Sun for International Angelman Day
Redland City Bulletin
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Teen works towards goals
Redlands City Bulletin
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Inclusion in the evolving dictionary
Sydney Morning Herald
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Hope on the Horizon
West Australian
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‘I play for him’
AFL News
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International News
- Cannabinoid BIO017 Receives FDA’s Orphan Drug Status
- Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds
- Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds
- FAST, SFARI Partner to Launch International Research Council
- ORCA, Reliable Measure of Communication for Angelman, in Early Use
- Pink, Green, Blue and Purple Lights Illuminated World for Rare Disease Day
- The Arc Awarded Comcast NBCUniversal Grant for Special Education Initiative
- Shoshin for Angelman Syndrome Caregivers
- Seizure Triggers in Angelman Syndrome
- Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion
- Rare Disease Day at NIH, Set for March 1, Growing Year by Year
- Seizure Action Plan for Angelman Syndrome
- Eurodis Survey: Healthcare Experience Worse for Rare Disease Patients
- Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients
- Angelman Syndrome and Surgery