Latest News – Angelman Syndrome Association Australia

Home > Latest News

Media Articles

Meet Elliott – Good Friday Appeal

Good Friday Appeal - Royal Children's Hospital, Melbourne

April 1, 2021

two young ladies and a smiling boy in the middle, holding a cricket bat and smiling

A Day for Tex to have a Ball

Courier Mail

March 26, 2021

four people sitting on a bench in the bush, two ladies caring for two teenage boys with Angelman syndrome, everyone is smiling

Fun in the Sun for International Angelman Day

Redland City Bulletin

February 16, 2021

Teen works towards goals

Redlands City Bulletin

January 6, 2021

‘He didn’t talk at 15 months, then we got the Angelman Syndrome diagnosis’

Kidspot

November 20, 2020

Inclusion in the evolving dictionary

Sydney Morning Herald

October 23, 2020

Hope on the Horizon

West Australian

October 8, 2020

‘I play for him’

AFL News

September 21, 2020

Closure of Cottesloe care centre

WA Today

June 23, 2020

Jumping castle provides much needed play for rural girl with Angelman syndrome

ABC Capricornia

May 1, 2020

How COVID-19 has impacted our medically fragile and rare disease community

SourceKids

May 1, 2020

Social Hibernation for the Vulnerable

SourceKids

April 1, 2020

Angelman Syndrome Association Australia Archive Feed

Angelman Syndrome Association Update - June 2020

International News

When Angels Help
Source: Angelman Syndrome News Published on 2021-06-18
The Difference a Lifeline Can Make for Special Needs Families
Source: Angelman Syndrome News Published on 2021-06-17
Get Ready for NORD’s Patient and Family Forum, Set for June 26-27
Source: Angelman Syndrome News Published on 2021-06-16
Jacob Family Pledges Up to $250K to FAST for Donation Matches
Source: Angelman Syndrome News Published on 2021-06-16
Overcoming the Challenge of Caregiver Isolation
Source: Angelman Syndrome News Published on 2021-06-10
Rare 2030 Action Campaign Pushing for European Plan for Rare Diseases
Source: Angelman Syndrome News Published on 2021-06-09
What Communication, Hybrid Career Models, and Summer Have in Common
Source: Angelman Syndrome News Published on 2021-06-03
Advocates Can Try for Grants Ahead of Rare Disease Week on Capitol Hill
Source: Angelman Syndrome News Published on 2021-06-02
KIK-AS Phase 1/2 Trial of GTX-102 Can Resume Enrollment in Canada
Source: Angelman Syndrome News Published on 2021-06-02
How Minimalism Keeps My World Spinning as a Caregiver
Source: Angelman Syndrome News Published on 2021-05-27
Foundation Funds Development of Cell Models to Advance Research
Source: Angelman Syndrome News Published on 2021-05-26
Wild Turkeys, Curious Cows, and Playing Hooky Give an Angel Something to Talk About
Source: Angelman Syndrome News Published on 2021-05-21
Pro Racer Cameron Lawrence Will Fuel FAST Awareness at NASCAR
Source: Angelman Syndrome News Published on 2021-05-19
Children Respond Differently to Different Learning Rewards
Source: Angelman Syndrome News Published on 2021-05-12
FAST Launching 24-hour Provider-to-provider Seizure Hotline
Source: Angelman Syndrome News Published on 2021-05-05