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Living with Angelman syndrome

Assistive technology (AT) is 'any device or system that allows individuals to perform tasks they would otherwise be unable to do or increases the ease and safety with which tasks can be performed' (World Health Organisation, 2004).

Most people apply AT in their daily lives; using voice-activated devices, smart phones, remote controls to perform tasks easier. For people with physical or cognitive impairments (disabilities), AT can make significant impact as follows:
- AT can assist them to communicate and learn;
- AT enable them to participate in work and/or social environment;
- AT can help them to achieve independence and improve their quality of life.

It can be low tech, free/low-cost technology or settings that are built-in to consumer devices. AT can also be used to benefit a wide range of students in the classroom.

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There's a revolution going on! A revolution run by and for people with Angelman syndrome, their parents, and the professionals who work with them.

Among the symptoms are developmental delay, lack of speech, seizures, and difficulties with walking and balance. Until recently, it was believed that people with Angelman syndrome had severe cognitive deficits and that very few of them would be able to learn to communicate fully, or read and write. Then came the revolution.

Read more here.

The ASF Communication Training Series takes all of the hours of great communication workshops and breaks them down into small, digestible parts so that you and your individual with AS can reach her/his greatest communication success at any age.

Using web-based teaching, the Series is designed to be sequential and can proceed through the training at your child’s pace of learning.

Find out more here.

All parents know how difficult it is to keep track of everything going on with their kids. From meals, to medications, to the daily schedule, children’s lives seem every bit as complicated as adults’ – maybe more. When a child has special needs, the complexity is raised to another level.

This free virtual assistant will help keep you and your kids organized. 

Discover user-friendly ways to schedule your child’s day, record your child’s meals, track games and activities, log medications, and share emergency contact information.

We hope the interactive planner makes your hectic life just a little bit easier.

Go to Planner

Under development

Under development

Under development

A story about Angelman syndrome

Meet Emily & Michelle

Meet Laura & her two children

Meet Joanne, Frank & Jacob